9 Ways Prednisone Affected Me: The Good, The Bad & The Moon Face

//9 Ways Prednisone Affected Me: The Good, The Bad & The Moon Face

9 Ways Prednisone Affected Me: The Good, The Bad & The Moon Face

The Good/The Positives Of Prednisone

  1. Prednisone helped my Eosinophilic Esophagitis. Past treatments didn’t work at all. It helped me have less severe flare-ups. I still get food impaction but the food will eventually go down (most of the time) opposed to when I would usually have to vomit or have to pull the food out.
  2. Before taking prednisone, I was extremely fatigued and sleepy all the time. If no one woke me up, I could sleep 20 hours straight. And even after the 20 hours, I was still tired and had brain fog among other issues. When my prednisone dose was brought up to 40 mg, it was such a difference. Keep in mind, I still didn’t feel “normal” but I was able to get up on my own and actually do some chores around the house. For those of you that are reading this and are chronically ill, having the energy to do housework is a pretty big win as you all know.
  3. Between 20 mg-40 mg of prednisone, I experienced a lot of relief from my aches and joint pain. It also greatly helped my spinal stenosis pain, which has been a literal pain in my neck.
  4. Any Celiac will tell you that being glutened is the worst. I was glutened at a restaurant. I became incredibly ill and weak. I thought because prednisone is an immunosuppressant, then it should help after being glutened. I spoke to my doctor and he increased my dosage. Within a day or so, I felt tremendously better. So whenever,  I do get glutened, prednisone saves the day. But always make sure to speak with your doctor and to taper the prednisone correctly after your glutened episode subsides.

The Bad

     5. Hair loss! I used to have an extremely thick ponytail and now it’s pretty wimpy. I find hair on my pillow when I wake up and hair just everywhere. Whoever visits my house, goes home with my hair attached to them. Lovely, right?

     6. Weight gain! I’m officially fluffy. I started prednisone in January 2018 at 120 pounds. I am now at 158 pounds.

     7. Abdominal bloating! Some spoonies nicknamed the stomach bloating as their baby elephant because it looks like you’re pregnant with a giant mammal. Enough said.

     8. Wired but tired. Prednisone at higher doses made me super wired but agitated. I would be so tired but I could not sleep for the life of me.

The Moon Face

     9. Prednisone is notorious for causing facial swelling. I wasn’t spared. With having chronic diseases, you have to have a sense of humor to deal with it all. I’m now affectionately nicknamed The Cabbage Patch Doll.

The Verdict: For me, prednisone is absolutely worth it.  It helped me do more than just exist. The months before beginning prednisone was me just surviving. I was mainly just eating and sleeping. With prednisone, I can actually do things and experience life again.The pros outweigh the cons but I would be lying if I didn’t say that the physical changes didn’t bother me. I’m really excited to begin blood augmentation treatment soon. I truly believe that it will help me the most and that one day I won’t need to take prednisone anymore. BUT please keep in mind that every body is different. Prednisone can and usually does cause serious side effects to most long term users. In the end, the choice is yours. Only use prednisone as a last resort and for the shortest time possible.

But until then, I’ll rock my new found curves and make a statement with our bold white “Elizabeth” nail lacquer.

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By |2018-10-14T21:11:30+00:00July 8th, 2018|Un{der}diagnosed|0 Comments

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